Chronic Fatigue Syndrome Survivors - For people living with ME/CFS

For people living with ME/CFS

We have Chronic Fatigue Syndrome or one of a dozen other names for this disease. We may not look sick, but we're survivors! *Yawn*

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CMV Effects

I have been asked to find people with CFS/ME, who have had Cytomegalovirus (CMV), to share what their experience with this virus has been. Most information is on the Epstein Barr virus. Both are Herpes type viruses leading to Glandular Fever, or Mononucleosis. All contributions welcome.

Discussion posted by Martin Buck Jul 13, 2010

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Martin Buck replied to Christina Gleason's discussion 'What are your primary and secondary CFS symptoms?'

Good list, Christina. I wish I could remember all of mine. Sometimes it gets so complicated - what helps asthma aggravates the ME, the strict requirements of diabetes make the occasional cravings hard to bear - at other times being sensible and…

Jul 13, 2010

Martin Buck replied to Christina Gleason's discussion 'What other illnesses do you have?'

I've had lousy health all my life, with multiple allergies, asthma, chronic bronchitis, and gut disturbances. But I was able to play sport, climb hills, work hard and party hard, with no energy problems except when I had disturbed sleep. After…

Jul 13, 2010

Martin Buck replied to Christina Gleason's discussion 'When did you discover you had CFS?'

I came down with a 'flu like illness (plus the usual bronchitis, requiring antibiotics) in July of 1997, when I was about to turn 40. A doctor said I had "Post Viral Syndrome", since I hadn't recovered within the usual three…

Jul 13, 2010

Martin Buck is now a member of Chronic Fatigue Syndrome Survivors Jul 13, 2010

Welcome Them!

Cindy updated their profile Nov 27, 2009

Cindy is now a member of Chronic Fatigue Syndrome Survivors Nov 27, 2009

Welcome Them!

Janette updated their profile Jul 13, 2009

Janette is now a member of Chronic Fatigue Syndrome Survivors Jul 11, 2009

Welcome Them!

perpetualspiral updated their profile Jun 17, 2009

Photos posted by Mina Jun 2, 2009

Mina is now a member of Chronic Fatigue Syndrome Survivors Jun 2, 2009

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jean lopardo and Christina Gleason are now friends Jun 1, 2009

Christina Gleason replied to Christina Gleason's discussion 'When did you discover you had CFS?'

Oh dear. I'm sorry for all you've been through, but I'm happy to know that you were granted disability in the end. I know they are notoriously stingy with giving money to the people who need it. jean lopardo said:In 1999 i had an…

May 17, 2009

jean lopardo replied to Christina Gleason's discussion 'When did you discover you had CFS?'

In 1999 i had an accute, severe viral inflammation of my brain and spine. the resulting fatigue was devestating.my doctor knew as soon as she examined me but had to wait a year to confirm it. i managed to continue working for 5 years but the…

May 14, 2009

jean lopardo is now a member of Chronic Fatigue Syndrome Survivors May 14, 2009

Welcome Them!